Medicated For Your Protection
The case reports on that freaky rare side effect for those AEDs
available only in Japan are hiding on teh InterGoogles somewhere.
Unlike practically all consumer/peer-run mental health sites, I’m out in the open about being batshit crazy. The stigmata regarding mental illness, epilepsy, assorted other neurological conditions, and taking the medications to treat them, are such that I don’t blame anyone for wishing to remain anonymous. It was easy for me to come out of the mental health closet on support groups and elsewhere in 2002. I’m treatment-resistant, so it’s highly unlikely I’ll ever be able to hold a job. Which is OK, because I’m such a cheap bastard I’m able to live off of the ad revenue Crazy Meds generates1. Plus I’m 52, rarely leave my property more than twice a month, and live near the crossroads of No and Where Montana, so it’s not like there are a buttload of employment opportunities waiting for me. Half the people in the small (population ~350) town know me as the guy who never leaves his house, and they give as much as a rat’s ass about it as I do. Ted Kaczynski interacted with his neighbors more than I do. As we have written all over the place, nobody here is a doctor, or anything close to a doctor, although I just love the term Citizen Medical Expert. Even though nobody else uses it, I’ve appropriated it for the forum moderators and use Chief Citizen Medical Expert as my job title. The only official letters after my name are A.A. From Heald college. During the Big Iron Age.
Let’s not forget about qualified by experience (QBE). I’m bipolar, epileptic, and in the moderate Asperger’s part of the autism spectrum. I’m frequently agoraphobic and generally socially indifferent to avoidant to so phobic I can’t even look at snail mail, let alone get on the Internet. I’ve spent five days in the locked ward of a psychiatric hospital, ironically due to complex partial seizures making me act especially weird along rebound autism symptoms from sudden discontinuation of Risperdal, and not bipolar disorder.
I’ve been treated for various brain cooties on and off since 1985, in Australia and the US, but continuously since 2001. Since 2002 I’ve been researching all I can about medications that I’ve failed, medications that worked but didn’t like me after a time, medications that have kept working (so far), and medications I’ll probably never take but people I know have. Prior to starting Crazy Meds I shared what I learned in various places, primary on the bipolar.about.com support group. I’ve accumulated over 15 linear feet of books and journals about the psychiatric and neurological conditions I’ve dealt with, the medications used to treat them, and general neurological, psychiatric, and pharmacological principles.
I’ve lived with several people who have a variety of brain cooties. Bipolar disorder is a popular trait with the male members of my family. Both of my ex-wife’s siblings are schizophrenic. Well, just her sister now, as pharmacophobia killed her brother, and I was flipping out too much myself to check up on him. There are few medications discussed on this site that I don’t have up close and personal experience with, and, one way or another, I have far too much experience with many of the conditions discussed here as well. Here’s the blog where I currently write about my various health issues. What I haven’t been through myself I’ve witnessed in others. I personally know how bad crazy can get, and I’m lucky to know that I’ve had it way easier than many people. The blog Batshit Crazy & Medicated for your Protection, has returned to being my personal space for whining and the ongoing documentary of procrastination. If the entire Crazy Meds site is down status reports will continue to be posted there.
My fellow fossils might remember me from my zine days. Way back in the 1980s - 1990s when I published Poppin’ Zits!2, wrote, helped edit, and published the online version of Factsheet Five on the WeLL, wrote and did assorted other stuff for MRR.Jerod Poore AA, CME, QBE
Owner, Founder, & Citizen Medical Expert
Crazymeds / crazymeds.us
Contact info and net.presents. The only place I answer questions about meds is on the forum.
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2 The zine with such a forward-looking and breakthrough design aesthetic that it was blamed for the pervasive information-overload style of MySpace pages.
Equal parts corporate annual report and cyberdelic migraine, Sharper Image catalogue and The Medium is the Massage, Wired is the limit case for postmodern technodazzle in graphic design, pushing the eyestrain envelope to just this side of unreadability. (It falls to magazines with a younger, fringier demographic, like Ray Gun and Poppin’ Zits!, to shatter the legibility barrier into postliterate fragments.) Plunkett and Kuhr’s design is meant to communicate the sped-up, off-center whirl of late 20th century culture, the cowabunga fun of surfing the Third Wave. —WIRED UNPLUGGED by Mark Dery.
How does that make me responsible for how the way MySpace looks? Dery quotes Marshall McLuhan:
McLuhan’s theory of “rear-view mirrorism,” which states that the content of each new medium is the medium it superseded (early movies emulated stage plays, for example). —WIRED UNPLUGGED by Mark Dery.
MySpace came into existence when blogs had completely - or nearly enough - replaced zines. Anyone who has seen an issue of Poppin’ Zits!, especially issues 4 through 9, and enough MySpace pages could easily tell who the daddy is.
Jerod Poore - Chief Citizen Medical Expert by Jerod Poore is copyright © 2012
Author: Jerod Poore. Date published: 2012–03–17. Last modified on 2014–07–28 by: JerodPoore.
Page design and explanatory material by Jerod Poore, copyright © 2004 - 2014. All rights reserved.
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Almost all of the material on this site is by Jerod Poore and is copyright © 2004, 2005, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013, and 2014 Jerod Poore. Except, of course, the PI sheets - those are the property of the drug companies who developed the drugs the sheets are about - and any documents that are written by other people which may be posted to this site will remain the property of the original authors. You cannot reproduce this page or any other material on this site outside of the boundaries of fair use copying without the express permission of the copyright holder. That’s usually me, so just ask first. That means if want to print out a few pages to take to your doctor, therapist, counselor, support group, non-understanding family members or something like that - then that’s OK to just do. Go for it! Please. As long as you include this copyright notice and something along the lines of following disclaimer, I’m usually cool with it.
All rights reserved. No warranty is expressed or implied in this information. Consult one or more doctors and/or pharmacists before taking, or changing how you take any neurological and/or psychiatric medication. Your mileage may vary. What happened to us won’t necessarily happen to you. If you still have questions about a medication or condition that were not answered on any of the pages you read, please ask them on Crazy Talk: the Crazymeds Forum.
The information on Crazymeds pertains to and is intended for adults. While some information about children and adolescents is occasionally presented (e.g. US FDA approvals), pediatric-specific data such as dosages, side effects, off-label applications, etc. are rarely included in the articles on drugs or discussed on the forum. If you are looking for information regarding meds for children you’ll have to go somewhere else. Plus we are big pottymouths and talk about S-E-X a lot.
Know your sources!
Nobody on this site is a doctor, a therapist, or a pharmacist. We don’t portray them either here or on TV. Only doctors can diagnose and treat an illness. While it’s not as bad as it used to be, some doctors still get pissed off by patients who know too much about medications, so tread lightly when and where appropriate. Diagnosing yourself from a website is like defending yourself in court, you suddenly have a fool for a doctor. Don’t be a cyberchondriac, thinking you have every disease you see a website about, or that you’ll get every side effect from every medication1. Self-prescribing is as dangerous as buying meds from fraudulent online pharmacies that promise you medications without prescriptions.
All information on this site has been obtained through our personal experience and the experiences family, friends, what people have reported on various reputable sites all over teh intergoogles, the medications’ product information / summary of product characteristic (PI/SPC) sheets, and from sources that are referenced throughout the site. As such the information presented here is not intended as a substitute for real medical advice from your real doctor, just a compliment to it. You should never, ever, replace what a real doctor tells you with something from a website on the Internet. The farthest you should ever take it is getting a second opinion from another real doctor. Educate yourself - always read the PI/SPC sheet or patient information leaflet (PIL) that comes with your medications and never ever throw them away. OK, you can throw away duplicate copies, but keep at least one, as that’s your proof of purchase of having taken a med in case a doctor doubts your medical history. Plus they take up less space than a bottle, although keeping one inside of a pill bottle is even better.
Crazymeds is not responsible for the content of sites we provide links to. We like them, or they’re paid advertisements, or they’re something else we think you should read to help you make an informed decision about a particular med. Sometimes they’re more than one of those things. But what’s on those sites is their business, not ours.
Crazymeds is optimized for the browser you’re not using on the platform you wish you had. Between you and me, it all looks a lot cleaner using Safari or Chrome, although more than half of the visitors to this site use either Safari or Internet Explorer, so I’m doing my best to make things look nice for IE as well. I’m using Firefox and running Windows 72. On a computer that sits on top of my desk. With a 23 inch monitor. Hey, at least you can make the text larger or smaller by clicking on the + or - buttons in the upper right hand corner. If you have Java enabled. Like 99% of the websites on the planet, Crazymeds is hosted on domain running an open source operating system with a variety of open source applications, including the software used to display what you’ve been reading. As such Crazymeds is not responsible for whatever weird shit your browser does or does not do when you read this site3.
No neurologists, psychiatrists, therapists or pharmacists were harmed in the production of this website. Use only as directed. Void where prohibited. Contains nuts. Certain restrictions may apply. All data are subject to availability. Not available on all mobile devices, in the 12 Galaxies Guiltied to a Zegnatronic Rocket Society, or in all dimensions of reality. Hail Xenu!
‘Everything is true, nothing is permitted.’ - Jerod Poore
1 While there are plenty of books to help you with hypochondria, for some reason there’s not much in the way of websites. Then again, staying off of the Internet is a large part of curing/managing the disorder.
2 Remember kids, Microsloth operating systems are like TOS Star Trek movies with in that every other one sucks way, way more. With TOS Star Trek movies you don’t want to bother watching the odd-numbered ones. With Microsloth OS you don’t want to buy and install the even-numbered ones. Anyone who remembers ME and Vista knows what I mean.
3 Have I mentioned how open source operating systems for commercial applications is one of the dumbest ideas in the history of dumb ideas? I don’t even need my big-ass rant any more. Heartbleed has made my case for me. And that’s just the one that got all the media attention. The very nature of an open source operating system makes security as much of an illusion of anonymity. Before you flip out too much: the domain Crazymeds is hosted on uses a version of SSL that is not affected by the Heartbleed bug. That’s one of the many reasons why I pay a lot of money and keep this site on Lunarpages.