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Topamax And Hair Loss


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#1 jcj

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Posted 17 October 2008 - 08:31 AM

Unless I'm blind or stupid, I can't find a thread that speaks to hair loss. I know it's a common side effect, but what I want to know one thing: if and when I stop the med, will my hair come back?

Funny, the word-finding difficulties, the cognitive difficulties, the taxing of major organs systems this med does has on my body has not bothered me nearly as much as this hair loss.

I have been house bound due to MAV for two years. I'm taking four preventatives and just now am starting to feel human again, starting to leave the house and now this. I don't go anywhere without a baseball cap on. Soon people will think I'm a cancer patient.

Anyway, back to the question: will it come back if i were to stop the med?

thanks guys.
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#2 Anna

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Posted 17 October 2008 - 01:02 PM

Unless I'm blind or stupid, I can't find a thread that speaks to hair loss. I know it's a common side effect, but what I want to know one thing: if and when I stop the med, will my hair come back?

Funny, the word-finding difficulties, the cognitive difficulties, the taxing of major organs systems this med does has on my body has not bothered me nearly as much as this hair loss.

I have been house bound due to MAV for two years. I'm taking four preventatives and just now am starting to feel human again, starting to leave the house and now this. I don't go anywhere without a baseball cap on. Soon people will think I'm a cancer patient.

Anyway, back to the question: will it come back if i were to stop the med?

thanks guys.


Hair loss due to meds is completely reversible upon stopping the med, I think. It might take a while for your hair to regrow. I had hair loss on trileptal and my hair is already thicker at 2 months off it.

Have you asked your doc about any supplements or things you could try to reverse the loss and still stay on the med?

Anna
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#3 jcj

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Posted 17 October 2008 - 01:49 PM

Thanks Anna,

I'll be speaking to him in a month and I will ask him, but he's truly a savant. he's a super-specialist who knows little outside of how to treat MAV. I doubt I'll get much info regarding this from him. But I'll try.

I've talked to one person on my MAV forum who she still has a Topamax-induced bald spot, which worries me.

I would love to hear from others

Thanks again, Anna!

jcj
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#4 Jerod Poore

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Posted 18 October 2008 - 07:31 AM

I've talked to one person on my MAV forum who she still has a Topamax-induced bald spot, which worries me.


The action of losing hair stops when you stop taking Topamax.

But it's not like anything will necessarily reverse once you stop. Any bald spots that form could still remain. Whatever cosmetic treatments one might try should work when not taking a med that causes hair loss.
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#5 In_Remission_OnTheBrink

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Posted 18 October 2008 - 07:48 AM

I lost nearly 40% of my hair while taking Lamictal and Trileptal in huge bald spots. Even after I stopped the meds my hair continued to fall out. I went to a dermatologist and rheumatologist who concluded that the medications triggered an autoimmune response - hair loss. I was prescribed a tapering schedule of prednisone which worked great!
Within the first few days of the pred. my hair completely stopped falling out... and within 2 weeks new growth could be seen. The Bad news is that once the tapering of prednisone ended, my hair began falling out again!!! i did the 8 week tapering schedule 3 separate times, and each time it ended, my hair began to fall out again. soooo i'm on 20mg of prednisone now for long term maintanence-- eventually i will taper off it again. The prednisone at 20mg has not caused weight gain or the "moon" face and my hair is growing in great.

#6 Jerod Poore

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Posted 18 October 2008 - 08:00 AM

I lost nearly 40% of my hair while taking Lamictal and Trileptal in huge bald spots. Even after I stopped the meds my hair continued to fall out. I went to a dermatologist and rheumatologist who concluded that the medications triggered an autoimmune response - hair loss. I was prescribed a tapering schedule of prednisone which worked great!
Within the first few days of the pred. my hair completely stopped falling out... and within 2 weeks new growth could be seen. The Bad news is that once the tapering of prednisone ended, my hair began falling out again!!! i did the 8 week tapering schedule 3 separate times, and each time it ended, my hair began to fall out again.


Welcome to Crazy Meds: home of outliers of all stripes!

That is one freaky rare side effect. Autoimmune alopecia. This is true alopecia, right? That 40% wasn't just on your head was it?
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#7 Mrs. Singer

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Posted 18 October 2008 - 08:01 AM

I lost nearly 40% of my hair while taking Lamictal and Trileptal in huge bald spots. Even after I stopped the meds my hair continued to fall out. I went to a dermatologist and rheumatologist who concluded that the medications triggered an autoimmune response - hair loss. I was prescribed a tapering schedule of prednisone which worked great!
Within the first few days of the pred. my hair completely stopped falling out... and within 2 weeks new growth could be seen. The Bad news is that once the tapering of prednisone ended, my hair began falling out again!!! i did the 8 week tapering schedule 3 separate times, and each time it ended, my hair began to fall out again. soooo i'm on 20mg of prednisone now for long term maintanence-- eventually i will taper off it again. The prednisone at 20mg has not caused weight gain or the "moon" face and my hair is growing in great.


Now that's weird. I was on prednisone and nasonex for a sinus infection a few weeks ago and the combination of steroids made my hair fall out in clumps. Luckily once I stopped the steroids, the hair loss stopped.

No hair loss with the Topamax so far.
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#8 jcj

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Posted 18 October 2008 - 08:10 AM

I've talked to one person on my MAV forum who she still has a Topamax-induced bald spot, which worries me.


The action of losing hair stops when you stop taking Topamax.

But it's not like anything will necessarily reverse once you stop. Any bald spots that form could still remain. Whatever cosmetic treatments one might try should work when not taking a med that causes hair loss.



Thanks Jerod, for the bad news. This is really depressing.

Shows you just how vain I am, I knew it was taxing my major organ systems. That didn't depress me. This does, big time.

Thanks though, i appreciate knowing.

jcj
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#9 Jerod Poore

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Posted 18 October 2008 - 10:53 AM

Shows you just how vain I am, I knew it was taxing my major organ systems. That didn't depress me. This does, big time.


There's a reason why God invented wigs and Rogaine.

As for taxing major organ systems, unless you're on dialysis or were already prone to problems with temperature dysregulation, I can't understand how Topamax would be a problem.
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Current meds: lamotrigine 300mg, topiramate 325mg, buspirone 60mg, protriptyline 60mg, EPA 600mg, methylphenidate 5-10mg, lorazepam 1mg PRN
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#10 jcj

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Posted 18 October 2008 - 12:24 PM

Shows you just how vain I am, I knew it was taxing my major organ systems. That didn't depress me. This does, big time.


There's a reason why God invented wigs and Rogaine.

As for taxing major organ systems, unless you're on dialysis or were already prone to problems with temperature dysregulation, I can't understand how Topamax would be a problem.


I admit to being melodramatic, but there's got to be a reason for the safety monitoring of creatinine and HCO3.
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#11 Jerod Poore

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Posted 19 October 2008 - 10:56 AM

I admit to being melodramatic, but there's got to be a reason for the safety monitoring of creatinine and HCO3.


Yes. Read the part in the PI sheet as to when that is required. "Renally impaired." I.e. ON DIALYSIS OR WALKING AROUND WITH ONE FUCKING KIDNEY.

Are you on dialysis? Do you have only one functional kidney? If so, have them monitored. If not, stop worrying about it.
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#12 Maddy

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Posted 19 October 2008 - 12:23 PM

Shows you just how vain I am, I knew it was taxing my major organ systems. That didn't depress me. This does, big time.


There's a reason why God invented wigs and Rogaine.

As for taxing major organ systems, unless you're on dialysis or were already prone to problems with temperature dysregulation, I can't understand how Topamax would be a problem.


I admit to being melodramatic, but there's got to be a reason for the safety monitoring of creatinine and HCO3.

Yeah and it's for people like me who have to take topamax (currently 500mgs) for seizures. I also have to watch my potassium intake because my kidneys are fucked from autoimmune disease. I'm currently pissing blood and and leaking protein and on prednisone treatment which is fucking with my moods, so please excuse my language and short temper. Back in '05 I was on cyclo/something (can't remember what the name of it was, sorry) treatment to bring my immunesystem in check because my immune system was fucking several of my organs over. It brought my immune system down so low that I got pneumonia in DEC of that year and had to be jerked off of it ASAP.

So with all of that in mind, it may put your melodrama in check.
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#13 medi

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Posted 20 October 2008 - 08:08 AM

Thanks Anna,

I'll be speaking to him in a month and I will ask him, but he's truly a savant. he's a super-specialist who knows little outside of how to treat MAV. I doubt I'll get much info regarding this from him. But I'll try.

I've talked to one person on my MAV forum who she still has a Topamax-induced bald spot, which worries me.

I would love to hear from others

Thanks again, Anna!

jcj

Topamax is not the only culprit. In the past 15 years, I've lost hair on Depakote, Topamax, Lamictal, and who knows what else. These were the obvious ones. In my case, hair loss will stop if I stop the medication causing it, but will not come back. In my case too, I am practically always on something that causes hair loss. It's gotten to the point where my teen-age son, who typically would not notice if I dyed my hair blue, has noticed (or maybe my ex commented). I have bought supplements that I heard help: selenium, zinc, biotin, and butterburrh (sp?). I have not been on them long enough to speak. I contemplated Rogaine, but I know that the minute you stop, you lose all it gave you. Also, I worry about what is entering my system and interactions with my meds.
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<p>Dx Axis 1: BD II. Had been diagnosed with MDD. Am sometimes also diagnosed with PTSD.Has undergone ECT in 2008.Current Meds: Lithium 600 mg, Synthroid 75 mcg, Inderal 40 mgs, Ativan 2 mg or more, as needed, Zolpidem.Have had experience with: Tricyclics (useless back then), Paxil, Celexa & Lexapro ( the three caused jitteriness&/or mixed states), Wellbutrin (also jitteriness, more severe), MAOI-B (Emsam patch)(hypomania, fun, but no way I could sit at my desk and think), Neurontin (innocuous), Depakote (too much weight gain, hair loss, sleepiness, lack of energy, and no noticeable benefit), Topamax (I'll only cite the suicidality obsession as of 75 mgs....), Lamictal (no benefit), Zyprexa (heart palpitations and shortness of breath at only 2.5 mgs), Abilify 2 mgs (serious GI pain), Calcium Channel Blockers (weak --- verrrry).


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