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Advice On Going Off Lamictal And What To Expect


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13 replies to this topic

#1 Brooke

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Posted 31 August 2012 - 05:38 PM

Hello,
I've always gotten good advice on CrazyMeds and thought I would ask for some in regard to this. I am currently tapering off Lamictal. I was taking 125 mg and have now been on 100 mg for 8 days. I have felt no effects.

What is your advice on a taper schedule to keep from having withdrawl symptoms? I have read the worst horror stories online. Is it possible to stop taking Lamictal without it being a traumatic experience? I am in no hurry, so I can do this as slowly as possible.

The plan was to lower to 75 mg in a week and see how I am. If good, go to 50 in two weeks, etc... Is that advisable? Does the titrating need to be really slow when getting to low doses? Like going to 12.5, then 6, etc?

Thanks for your advice.

Brooke
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#2 Rane

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Posted 31 August 2012 - 05:43 PM

i'd do 12.5 increments.
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Lithium (0.9 @ 750mg/day), Lamotrigine (400mg/day), Levoxyl (88 mcg), Lorazapam (prn).

Fails: amitriptyline, zoloft, prozac, wellbutrin, depakote

#3 notfred

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Posted 31 August 2012 - 10:00 PM

You taper off the same way you did going on it, but in reverse.
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I am in full remission (296.36) from Depression. Insomnia, ADHD-PI, Epilepsy, and the Pseudoparkinsonian tremor are well controlled.

 

Psyc Meds: Forfivo XL 450 mg (Wellbutrin XL), Abilify 15 mg, (Aripiprazole), Eszopiclone 6 mg (Lunesta), Vyvance 70 mg, (dextroamphetamine) Levetiracetam 2,000 mg (Keppra), Propranolol ER 60 mg (Inderal)
PRN: Lorazepam 1-4 mg (Ativan), Alprazolam 1-2 mg (Xanax), Dextroamphetamine 10-40 mg (Dexedrine), Propranolol 20-40 mg (Inderal)

Supps: Multi-vitamin/mineral, Vitamin D 2,000 IU, Fish oil 7.2 g

Dx: Depression, Insomnia, ADHD-PI, Epilepsy, Dyspraxia, Tremor

I also take allergy and diabetes + it's complications meds.

All doses are a daily total.


#4 Brooke

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Posted 01 September 2012 - 06:28 PM

Yeah, cannot remember the titration schedule. Been way too long.

Thanks guys.
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#5 Nurse Ratched

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Posted 01 September 2012 - 06:46 PM

If you can't remember, go by 12.5. 25 at the very most. I had to stop all at once because of "bad" rash and it was quite miserable. Tapering slowly should help you avoid all of that. Good luck!
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Current Meds: Topamax 200 mgs, Seroquel XR 300 mgs, Wellbutrin 300 mgs, Vistaril 50 mgs x4, Klonopin .5 mgs, Ambien CR 12.5 mgs

Former meds: Paxil, Zoloft, Effexor, Remeron, Elavil, Abilify, Lamictal, Geodon, Zyprexa, BuSpar, Xanax, Depakote, Trazodone, Ambien, Lithium, Risperdal, Doxepin,  Cogentin, Haldol, Saphris, Latuda, Neurontin, Lexapro.


#6 Brooke

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Posted 02 September 2012 - 02:58 PM

thank you!
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#7 PatientZero

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Posted 03 September 2012 - 12:15 AM

I've slopped it from 200mg over 1-2 weeks several times without problems. YMMV
I have permanent sleep and cognition issues with lamotrigine, that's why i lost patience with it several times. Turned out though that nothing else helps my depression without making my hypomanic. That's why i am back on it now after 3 years of trying other meds.
So far only Ambien helps my sleep, but that's something thats not supposed to be taken long-term, so i am fucked i guess.
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Past meds:
Lithium, Lamotrigine, Carbamazepine (Tegretol), Oxcarbazepine (Trileptal), Quetiapin (Seroquel XR), Valproic acid (Depakote) Pregabalin (Lyrica), Venlafaxin (Effexor), Citalopram, Zuclopenthixol, Chlorprothixene, Bupropion (Wellbutrin), Doxepin, Agomelatine (Valdoxan), Moclobemide (Aurorix), Flupentixol, Mirtazapine (Remeron), Geodon, Abilify, Tianeptine, Fluoxetine, Escitalopram, Sertraline, Duloxetine,


#8 Brooke

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Posted 03 September 2012 - 05:28 AM

Thanks. I'm glad you were able to stop taking it with no problem. The horror stories I read are scary. Hoping I don't experience any of that.

I'm sorry lamotrigine causes such problems for you. Have you tried the brand instead of generic? I was unable to take the generic. It messed me up.

Right now, for sleep I am taking 5 HTP (Pure Encapsulations) + Magnesium Glycinate + B6, as prescribed by not my pdoc, but another doctor of mine. Pdoc has approved. It is very helpful to give me good deep sleep. I notice a huge difference without it. You have to be careful with 5 HTP b/c it increases Serotonin, so if you have any med that does the same, it could be a problem.

I take Lunesta too. Have you tried up to 6 mg? I once had to take that much. Now I take 3 and am hoping to stop taking it with a few other natural sleep aids I am going to try per my doctor. I liked Lunesta better than any sleep med I tried. I only tried Seroquel (I do not recommend) and Ambien though. Anyway, Lunesta can be taken long-term.
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#9 PatientZero

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Posted 03 September 2012 - 05:42 AM

My pdoc says i can't take Ambien long-term, same goes for the other Z meds (Zopiclone and Zaleplon) which have a similar way of working.
I only had different generics so far, and it was the same with each one of them. Therefore i doubt it would change much. Good thing about several generics is, that they are free.
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Past meds:
Lithium, Lamotrigine, Carbamazepine (Tegretol), Oxcarbazepine (Trileptal), Quetiapin (Seroquel XR), Valproic acid (Depakote) Pregabalin (Lyrica), Venlafaxin (Effexor), Citalopram, Zuclopenthixol, Chlorprothixene, Bupropion (Wellbutrin), Doxepin, Agomelatine (Valdoxan), Moclobemide (Aurorix), Flupentixol, Mirtazapine (Remeron), Geodon, Abilify, Tianeptine, Fluoxetine, Escitalopram, Sertraline, Duloxetine,


#10 Nurse Ratched

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Posted 03 September 2012 - 06:58 AM

Just want to point out that 5 HTP could be BAD for people with bipolar. Sorry. Just a warning. :)
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Current Meds: Topamax 200 mgs, Seroquel XR 300 mgs, Wellbutrin 300 mgs, Vistaril 50 mgs x4, Klonopin .5 mgs, Ambien CR 12.5 mgs

Former meds: Paxil, Zoloft, Effexor, Remeron, Elavil, Abilify, Lamictal, Geodon, Zyprexa, BuSpar, Xanax, Depakote, Trazodone, Ambien, Lithium, Risperdal, Doxepin,  Cogentin, Haldol, Saphris, Latuda, Neurontin, Lexapro.


#11 Brooke

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Posted 03 September 2012 - 07:34 AM

i wondered about that with bipolar. Glad you posted.
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#12 in_media_res

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Posted 04 September 2012 - 02:57 PM

Just want to point out that 5 HTP could be BAD for people with bipolar. Sorry. Just a warning. :)


How so?
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dx: Atypical depression with some features of borderline personality; Obsessive-compulsive disorders
rx: Ziprasidone 60 mg, Zolpidem ER 12.5 mg, Lorazepam .5 mg. Synthroid 112 mcg

hx: Stuff that didn't work: Lamotrigine, Paxil, Prozac, Effexor, Wellbutrin, Lexapro, Straterra (for attention), 5-HTP, supplements. Some sort of a TCA early on -- don't remember which one.

 

May you be held in compassion.
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May you find rest in a peaceful heart.


#13 Rane

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Posted 04 September 2012 - 03:47 PM

Here is some completely unverified opinion from Squidoo, BUT I've heard here and elsewhere that 5-HTP can work like a SSRI, which can cause mania in some bipolar people.

Just to say, I heard voices when I tried St. John's Wort. My pdoc was angry that I tried it without telling her. She said that it acts like an SSRI and just because it's herbal, doesn't mean it's safe.

link to squidoo about 5-htp
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Lithium (0.9 @ 750mg/day), Lamotrigine (400mg/day), Levoxyl (88 mcg), Lorazapam (prn).

Fails: amitriptyline, zoloft, prozac, wellbutrin, depakote

#14 jackeeanne

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Posted 06 June 2013 - 11:50 PM

I am going of lamictal because the side effects actually became unbearable around the 75 mark. I was not sleeping, every muscle in my body ached so much it was hard to walk even with tylenol, i couldn't look at anything bright without having to lay down and close my eyes, my mental confusion was actually scary, and i was naseuous pretty much all the time.I could go on but really , but really the point is  I was beyond miserable and unable to function. I tried to hang in there and only stopped cause I had to miss so much work. My PA told me to go off it over the phone by titrating off at 25 mgs for a week. Well I've been done with that for almost a week and while I still feel MUCH better I am still achy,my sleeping is ridiculously disrupted, and I continue to have weird mental confusions breaks.I never had those problems before I went on this drug. I'm really scared that by taking this drug (for over a month which isn't really that long?) that these things are permenant. Am I being paranoid? or is this possible? Does it just take this long for it to get out of you system?I feel like I've poisoned myself in some way with how badly my body reacted to this drug and I've been on lots of different medication none of which has really worked but I didn't have these scary things happening.

 

If anyone has had any similar experiences or knowledge I'd appreciate it. I did have an appointment this week which i had to miss because my boss is really mad that I've pretty much used up all my sick/vacation days because of this and the problems that led to this. The next available appointment is over a  month away and I can never seem to get straight answers from my psych or the PA when  I do see them. They didn't warn me at all about anything that could happen besides the rash and pretty much dismissed my telling them how bad the side effects are getting however, there is very little mental health care here. Ugh! I'm rambling any information would be helpful sorry for the long post. I'm just frustrated and tired of feeling physically crappy on top of all the mental issues. Thanks!

 


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