Am I The Only One Who Has Had Too Many Ect Treatments To Count?
Posted 07 December 2011 - 11:03 AM
Well, I have been getting maintenance ECT for 7 yrs now (either weekly or bi-weekly). I know... It sounds nuts. But it it has been the only therapy that has kept me alive so far. It has also done more than it's share of destroying my memory and cognition.
I wondered if there was anyone else on this planet who has had countless ECTs like me? I feel like an alien most of the time to be honest. It would be so nice to meet others who have been in or are currently in this situation. Figure I would reach out and ask.
Posted 07 December 2011 - 03:21 PM
Experience in: Alprazolam, Aripiprazole, Bupropion, Chlordiazepoxide, Citalopram, Clonazepam, Clozapine, Dothiepin, Duloxetine, ECT, EMDR, Fluoxetine, Imipramine, Lamotrigine, Lithium, Lorazepam, Mirtazapine, Moclobemide, Olanzapine, Paroxetine, Procyclidine, Propranolol, Quetiapine, Reboxetine, Risperidone, Sertraline, Sodium Valproate, rTMS, Tranylcypromine, Trifluoperazine, Venlafaxine, Zolpidem, Zopiclone.
Posted 10 December 2011 - 04:44 AM
That does sound like a lot.
I had a course of ten and my pdoc did talk about maintenance ECT if I needed it.
The maintenance ECT would start off once a week for a few months, then once a fortnight for a few months, and then once a month for six months.
Luckily I didn't need it after ten rounds.
I know what it's like for medications not to work, so if it helps stick with it.
You certainly seem much braver than I was.
Edited by Rambler, 10 December 2011 - 04:50 AM.
Posted 10 December 2011 - 01:37 PM
Posted 07 February 2012 - 09:17 PM
Posted 15 February 2012 - 05:47 PM
Edited by Rainman56, 16 February 2012 - 10:28 AM.
Posted 17 February 2012 - 02:35 PM
Posted 13 January 2013 - 03:50 PM
You are NOT alone! I was wondering if I was some kinda freak too. I have been getting ECT's sine June of 2007. (51/2 years) I have had somewhere around 100 treatments now. I tried everything, all the meds. They either didn't work, or had awful intolerable side effects that I couldn't possibly live with.
I tried ECT and it saved my ass.....I started getting maintenance treatments monthly, but I too paid the price of losing my memory and cognitive skills. Several times I thought I would be okay without it and stopped for a while. Everytime I ended up relapsing and in a severely mixed depressive situation where It was the only thing that got me out alive! I am 47 years old and I am now on permanent SSDI, I have lost much of my long term autobiographical memories such as the birth of my son, my school graduation (of which I gave the class speech) and alot more. I have to admit that its pretty extreme and it can be very frustrating, but Its a choice I have made because it's the trade off that gives me my life back without the pain and suffering that I was dealing with every day for so many long years.
You are not alone! What sucks is the stigma that we must face every day by the ignorant people out there that think we are some type of "freaks" straight out of the movies.......When we are just people with a disease that causes us to need our "medication" just like any other type of physical illness does with anyone else that is ill. Stay in touch......Kat
Edited by Shocked5150, 14 January 2013 - 11:24 AM.
Posted 16 September 2014 - 01:14 PM
For about five years between 1995 and 2000 I was mis-diagnosed or "un-diagnosable" . Like the original
poster, though, ECT seemed to help ease my discomfort, so I received it every 1-2 weeks, cause "it worked".
i probably had between 60-80 treatments. Interestingly enough, after a correct diagnosis of OCD and the help
of a local OCD Doc, I stopped ECT cold turkey (albeit with a lot of work doing behavior therapy). Sometimes, I feel anger about
the amount of ECT I received. But like someone else mentioned, it may have kept me alive.
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