Jump to content


Click here to find a mentally interesting date at No Longer Lonely Keep Crazymeds on the air. Donate some spare electronic currency you have floating around The Cloud




Some Crazymeds mugs to help you wash down your meds. Get mugged for at Straitjacket T-shirts for more. 11oz mugs are $13. 15oz mugs are $14.
Mentally Interesting mug
Mentally Interesting mugs
Medicated For Your Protection mug
Medicated For Your Protection mugs
Team Bipolar mug
Team Bipolar mugs
I <3 Wellbutrin mug
I <3 Wellbutrin mugs
Photo

After Taking A Prophylactic For Migraines I Still Get All The Symptoms

migraines

  • Please log in to reply
6 replies to this topic

#1 Sweetwine

Sweetwine

    DIY Trepanist

  • Members
  • Pip
  • 13 posts
  • Diagnoses:Pain, Anxiety
  • Current Meds:Morphine, nortriptyline
  • Location:Canada

Posted 23 March 2012 - 02:49 PM

I've been taking a migraine prophylactic for 10 weeks (nortriptyline 50mg/day) but I still get all the symptoms...aura, confusion, tired, nausea, vomiting, light and noise sensitivity, throbbing...and breakthrough pain...is that the way it's supposed to work?

Or, are these silent migraines, migraines with all the symptoms but without the pain?

The symptoms are there so much of the time I just want to have the migraine and get it over with!

My family Dr says, those are just the sensations of having a migraine and that given a choice between those sensations and a migraine, he would choose the sensations.

When I wake up with a throbbing head I obviously did not take the trouble to create the "sensations" while I slept.

Is my Dr right? Are these sensations that I create out of habit and so will disappear over time?--or am I right, that these are silent migraines?

Should I increase the dose or move on?
  • 0




Enable Crazymeds to keep ranting about being crazy and taking meds. Donate some spare electronic currency you have floating around The Cloud



Stick to your treatment plan with buttons and magnets. 2.25″ $4 & 3.5″ $4.50 at Straitjacket T-shirts
Pile of Pills buttons at Straitjacket T-shirts
Pile of Pills buttons
Batshit Crazy buttons at Straitjacket T-shirts
Batshit Crazy buttons
Medicated For Your Protection buttons at Straitjacket T-shirts
Medicated For Your Protection buttons
Mentally Interesting buttons at Straitjacket T-shirts
Mentally Interesting buttons



#2 VisualSnow

VisualSnow

    Amateur Psychopharmacologist

  • Members
  • PipPip
  • 258 posts
  • Diagnoses:Migraine, Anxiety
  • Current Meds:Cymbalta, Zofran, Protonix

Posted 24 March 2012 - 11:14 AM

Are they occuring in the same pattern as with your headaches? No one can diagnose you over the internet, but it's entirely possible you are having what they call "acephalgic migraine", which is migraine without the headache portion. 10 weeks isn't a long time for a migraine medicine - many doctors suggest a minimum of 12 weeks trial. At that time, you decide with your doc whether to stick with it, change dosages, or change/add medications.

Is your family doctor the one treating your migraines? If so, I would suggest seeing a neurologist specializing in headache disorders instead. That person will know how to diagnose and treat your symptoms much better.

Edited to add: As for upping your dose, it depends on how much relief you have gotten. How much is your frequency and intensity down?

Edited by VisualSnow, 24 March 2012 - 11:15 AM.

  • 0

#3 Sweetwine

Sweetwine

    DIY Trepanist

  • Members
  • Pip
  • 13 posts
  • Diagnoses:Pain, Anxiety
  • Current Meds:Morphine, nortriptyline
  • Location:Canada

Posted 26 March 2012 - 11:57 AM

My ophthalmologist referred me to a neurologist who suggested my family Dr prescribe accupuncture, feverfew, topamax or amitriptyline. In his report he outlined the symptoms I was suffering from and included things like neck and back of the head pain--none of which I have ever had. He concluded I probably had migraines and probably had tension headaches.

For 2 months before starting nortriptyline I didn't have any migraines. But I can't really be so sure because I'm on painkillers 24/7 so they take care of the pain so it doesn't register.

The Dr insisted I try it because he said there was no point waiting til I had one and maybe we can reduce the amountof painkillers I'm on..

But as soon as I got the nortriptyline up to 50mg, on the 2nd day I had a migraine that lasted for another 8 days. This is what they are usually like. Nobody knows why they suddenly stopped, but it has happened before. I always had the auras but they didn't lead to a headache or migraine. But now I always have these symptoms...so the nortriptyline has only taken the pain?

Wouldn't these prophylactics get rid of headaches, migraines, the symptoms and the auras?
  • 0

#4 VisualSnow

VisualSnow

    Amateur Psychopharmacologist

  • Members
  • PipPip
  • 258 posts
  • Diagnoses:Migraine, Anxiety
  • Current Meds:Cymbalta, Zofran, Protonix

Posted 26 March 2012 - 12:27 PM

Well, it's possible that the nortriptyline is getting rid of pain but not really working well as a preventative for you. It's used for a lot of pain disorders, and is pretty good as helping with that. If it's not actually helping prevent the process for you though, you would still be getting other symptoms of migraine (prodrome, aura, etc.). If you are on morphine 24/7 still, that could account for some (or all) of this too.

FWIW, the morphine probably has you stuck in a rebound cycle. If you ever try and reduce the morphine, you will probably end up with a headache that won't quit. It's very likely to be more rebound pain than true migraine. Is the morphine for your headaches or something else?

I'm confused by your neurologist - not only are your records inaccurate by the sound of it, but instead of prescribing your neuro meds himself, he deferred to someone else to do so? That's just strange - what was his reasoning for this? Can you get a second opinion?

You also said these prophylactics - are you on more than the nortriptyline?
  • 0

#5 Sweetwine

Sweetwine

    DIY Trepanist

  • Members
  • Pip
  • 13 posts
  • Diagnoses:Pain, Anxiety
  • Current Meds:Morphine, nortriptyline
  • Location:Canada

Posted 23 April 2012 - 01:02 PM

Hello again Visual Snow,

Thank you for your info.

In answer to your questions:

When I said "these prophylactics" I meant all of them in general.

The morphine is for the pain from a tumor in my head. The issue for the neurologist was whether or not the tumor was causing these headaches and what kind of headaches they were.

I saw that neurologist for all of 7 minutes. He spent most of that time trying to open the MRI and he couldn't. So, he, "just had to make a guess." The issue was obviously all too elementary to bother him with.

You guessed it, my GP's concluded it hasn't helped as much as a migraine preventive as its helped to reduce pain.

It's been 11 weeks at 50mg of nortriptyline (plus 2 weeks titrating) and my GP has decided to just leave it all alone for now and added Imitrix for when I get a full blown migraine. IHe still believes it's effectiveness might improve. Later, he's thinking, he might add topomax, too.

No rebound headaches from the morphine. It's dose is always the same, every day, to minimize fluctuations effecting the nortriptyline during its trial run.

Its really hard-going, though.
  • 0

#6 martasi2

martasi2

    Ready for the MCAT

  • Citizen Medical Expert
  • PipPipPipPip
  • 2,198 posts
  • Diagnoses:BP, GAD, OCD, asthma, migraine
  • Current Meds:keppra, ambien, QVAR
  • Location:U.S.

Posted 23 April 2012 - 01:34 PM

The morphine is for the pain from a tumor in my head. The issue for the neurologist was whether or not the tumor was causing these headaches and what kind of headaches they were.

I saw that neurologist for all of 7 minutes. He spent most of that time trying to open the MRI and he couldn't. So, he, "just had to make a guess." The issue was obviously all too elementary to bother him with.


It's not clear to me who diagnosed you with migraines or whether your pain is in fact a migraine. You have a brain tumor, but your neurologist has not given you a working diagnosis about the cause of your pain because he can't figure out how to read the MRI.

I know you've asked for input about your migraines and meds, but you've got to get a diagnosis from your neurologist first. If he can't or won't help you, try for an appointment with another neurologist on staff.
  • 0
"I don't spend more than five minutes a month in the past. The past really is a
foreign country, and they do things differently there." (Raymond Carver)

#7 VisualSnow

VisualSnow

    Amateur Psychopharmacologist

  • Members
  • PipPip
  • 258 posts
  • Diagnoses:Migraine, Anxiety
  • Current Meds:Cymbalta, Zofran, Protonix

Posted 23 April 2012 - 03:09 PM

I totally agree with the above poster. With the new information you have shared, it sounds like your diagnosis is wishy-washy ("I can't open the MRI so I'm just going to guess" um... WTF?), and the first thing you need to do is find a neurologist who will LISTEN to you and help you. The tumor potentially makes this not your typical migraine case, which will make a neurologist who understands your condition and who is willing to take the time with you all the more important.
  • 0



0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users




Keep Crazymeds on the air. Donate some spare electronic currency you have floating around The Cloud





Keep up with Crazymeds and and/or my slow descent into irreparable madness boring life. Pick your preferred social media target(s):
Follow Jerod Poore on Facebook
Wear my StraitjacketBatshit Crazy Blog
Crazymeds | Promote Your Page Too
Play Dress-Up with your Imaginary FriendsCrazymeds: The Blog


Just a few designs from our Crazymeds' Clothes Line. See more ways to let my meds express your feelings at Straitjacket T-shirts. Shirts, hoodies & more, $15-$43. Or search the Amazon for your retail Nirvana.
Batshit Crazy shirt
Batshit Crazy shirts
Mentally Interesting shirt
Mentally Interesting shirts
Medicated For Your Protection shirt
Medicated For Your Protection shirts
Breakfast of Champions shirt
Breakfast of Champions shirts