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What Do You Take If You Still Get A Migraine On Topomax?

Topomax; migraine

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15 replies to this topic

#1 bjennae

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Posted 21 March 2012 - 08:51 PM

Since some people still get migraines on Topomax, what do you take? I have a script for Maxalt but that makes me tired too. Don't want to be catatonic.
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#2 dymphna

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Posted 21 March 2012 - 11:34 PM

Alcohol in large quantities?

No, seriously... Naproxen. But you can only do it rarely or you'll kill your kidneys.

If you're still getting constant migraines on Topamax, either it isn't the drug for you, or you need your dose adjusted. I have a weird-ass variant migraine (24-7-12 in the absence of Topamax) that doesn't stay at bay w/o 400mg of the stuff. And even then, peri-menopause is a bitch and I get one every couple/few months or so.


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Yes, my name really is Dymphna.

 

I'm not a doctor, nurse, pharmacist, or therapist.

I can find you an answer and I won't blow smoke up your ass.

 

St. Dymphna is the Patron for brain maladies.

 

I'm the Enforcer.

 

eqnmrt.jpg

 

 

In these epistles there are certain things difficult to understand, which the unlearned and the unstable distort,
just as they do the rest of the Scriptures also, to their own destruction.

 

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#3 Nurse Ratched

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Posted 22 March 2012 - 06:26 AM

You can try adding propranolol. I take both. I started with propranolol which helped a little and topa knocked them out.
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Current Meds:  Seroquel XR 300 mgs, Vistaril 100 mgs prn

Former meds: Topamax 200 mgs, Risperdal 2 mgs, Wellbutrin 300 mgs, Klonopin .5 mgs, Paxil, Zoloft, Effexor, Remeron, Elavil, Abilify, Lamictal, Geodon, Zyprexa, BuSpar, Xanax, Depakote, Trazodone, Ambien, Lithium,  Doxepin,  Cogentin, Haldol, Saphris, Latuda, Neurontin, Lexapro, Ambien


#4 VisualSnow

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Posted 23 March 2012 - 12:28 PM

How much of a reduction have you gotten? 50% reduction is considered a successful prophylactic in many practices. Even with a very successful preventative, it's likely that you'll still get a migraine from time to time. You can choose to use your abortive, and/or choose a med to cover the pain (e.g. Excedrin). If you are still getting frequent migraines, you could consider an adjunct to the Topamax or an alternative if it's not doing anything for you. You should always have an emergency kit for breakthroughs though. Maxalt isn't the only abortive option - have you tried others?

I also have chronic migraine (a day withOUT one is pretty damn rare) and can't take triptans due to the type I have. Usually a pain killer plus Benadryl or Dramamine is what I take when things get really bad.
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#5 Nurse Ratched

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Posted 23 March 2012 - 03:39 PM

Compazine is a very effective emergency med that will kill a migraine.

I still get one once every month or two.
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Current Meds:  Seroquel XR 300 mgs, Vistaril 100 mgs prn

Former meds: Topamax 200 mgs, Risperdal 2 mgs, Wellbutrin 300 mgs, Klonopin .5 mgs, Paxil, Zoloft, Effexor, Remeron, Elavil, Abilify, Lamictal, Geodon, Zyprexa, BuSpar, Xanax, Depakote, Trazodone, Ambien, Lithium,  Doxepin,  Cogentin, Haldol, Saphris, Latuda, Neurontin, Lexapro, Ambien


#6 VisualSnow

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Posted 23 March 2012 - 03:57 PM

Compazine is a very effective emergency med that will kill a migraine.

I still get one once every month or two.

Ah yes. Reglan too, though I think both are more effective for that if given via IV vs. oral. Oral can still be helpful though.

Once every month or two? That must be heavenly...
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#7 Nurse Ratched

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Posted 23 March 2012 - 05:51 PM

Oh god, yeah.
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Current Meds:  Seroquel XR 300 mgs, Vistaril 100 mgs prn

Former meds: Topamax 200 mgs, Risperdal 2 mgs, Wellbutrin 300 mgs, Klonopin .5 mgs, Paxil, Zoloft, Effexor, Remeron, Elavil, Abilify, Lamictal, Geodon, Zyprexa, BuSpar, Xanax, Depakote, Trazodone, Ambien, Lithium,  Doxepin,  Cogentin, Haldol, Saphris, Latuda, Neurontin, Lexapro, Ambien


#8 luckycloverchic

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Posted 29 March 2012 - 07:23 AM

I usually take vicoprofen or dilaudid (if I'm at work) to ease pain when I get a migraine. I currently take topiramate (topamax) and propranolol as preventatives but get breakthrough migraines pretty regularly. Not nearly as bad as before, but I couldnt function without something for pain when they do break though. I cant take any of the triptans due to side effects and steroid treatments end badly with me also....but either of those may work well for you.
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#9 DivineChaos82

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Posted 22 May 2012 - 09:16 AM

I also suffer frequent migranes despite Topamax. I had them 6 days out of the week (avergae) pre-treatment, now with the Topamax I am still having 4-5 a week, along with the mental capacity of a crayon. Sadly my lovely pain management drs don't seem to think migranes are a legitamat (sp?) sourse of pain. I am given 10 mg Hydros... which does jack squat but make me itchy and more nauseated. I have also noticed my muscle tics have increased in intensity and frequency since starting topamax... anyone else have that issue?
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#10 VisualSnow

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Posted 22 May 2012 - 09:59 AM

If you are not getting good relief on Topamax and have given it enough time, have you talked to your doc about switching to a new preventative? There are lots out there. Pain management is a tricky situation with migraine. Pain killers can and will cause rebound if you use them more than 2-3 days per week. When you have a migraine nearly every day (I do too), it's really hard and a delicate situation because it's so easy to get stuck in rebound and make things worse.

As for the muscle twitching - could it be hydration or electrolyte issues? Topa likes to mess with the kidneys.
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#11 dymphna

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Posted 23 May 2012 - 12:40 AM

I have to drink Pedialyte every day.


d
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Yes, my name really is Dymphna.

 

I'm not a doctor, nurse, pharmacist, or therapist.

I can find you an answer and I won't blow smoke up your ass.

 

St. Dymphna is the Patron for brain maladies.

 

I'm the Enforcer.

 

eqnmrt.jpg

 

 

In these epistles there are certain things difficult to understand, which the unlearned and the unstable distort,
just as they do the rest of the Scriptures also, to their own destruction.

 

(II Peter 3:16)


#12 iloveblackberryjam

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Posted 31 March 2013 - 12:45 AM

Valium works for me, if regular NSAIDS don't touch it. Have you tried regular aspirin? BB
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#13 iloveblackberryjam

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Posted 31 March 2013 - 12:48 AM

As for feeling "dumb", Keppra (low dosage, 500mg x2daily) brings my brain & speech back to normal. It actually makes me much "smarter". I'd be miserable without it.
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#14 RedHeadedHope

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Posted 30 December 2014 - 02:35 PM

What about sumatriptan? My PCP rx'd me Topa daily and Suma as per needed for breakthrough migraines. I'm getting worried that I don't see that as a suggestion on here.
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Dx: MDD, Anxiety, OCD, and PTSD.

Current meds: Wellbutrin XL 300mg, Topamax 25mg, Seroquel 25mg

Past meds:
Paxil
Lexapro
Zoloft
Prozac
Ambien
Trazadone
Trilafon
And other meds my med induced mind forgot.


My life summed up:
I can never read all the books I want; I can never be all the people I want and live all the lives I want. I can never train myself in all the skills I want. And why do I want? I want to live and feel all the shades, tones and variations of mental and physical experience possible in life. And I am horribly limited.

#15 dymphna

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Posted 31 December 2014 - 01:50 AM

Luckycloverchick mentioned that she couldn't take triptans, but I see your point.  It is also a thread from 2012, so perhaps the OP found an answer.  We don't mind necroposting, BTW - we actually encourage it. ;-)

 

 

Dymphna


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Yes, my name really is Dymphna.

 

I'm not a doctor, nurse, pharmacist, or therapist.

I can find you an answer and I won't blow smoke up your ass.

 

St. Dymphna is the Patron for brain maladies.

 

I'm the Enforcer.

 

eqnmrt.jpg

 

 

In these epistles there are certain things difficult to understand, which the unlearned and the unstable distort,
just as they do the rest of the Scriptures also, to their own destruction.

 

(II Peter 3:16)


#16 crazyinbrooklyn

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Posted 05 January 2015 - 08:01 PM

Also surprised I don't see depakote as an option listed here. Don't think it's usually considered first line due to more se's than topamax but definitely a solid option as a preventative med


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Dx: BP NOS/ Cyclothymia, Anxiety, Insomnia

 

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Rx: Lamictal 200mg, Gabapentin 900mg, Trazodone 50mg

 

 

Physical Meds: Botox 300units/ 3months for hyperhidrosis, fish oil, Prilosec 20mg PRN

 

Experience with: Adderall, Adderall XR, Ritalin LA, Vyvanse, Zoloft, Prozac, Lexapro, Pristiq, Effexor XR, Remeron SolTab, Trazodone, Ambien, Lunesta, Valium, Sonata, Xanax, Klonopin, Ativan, Topamax, Lamictal, Depakote, Buspar, Propranolol, Seroquel XR, Zyprexa, Stelazine, Risperdal, Seroquel IR, Wellbutrin XL, Wellbutrin SR

 

    

 



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